> From: Carolyn A. Webb <Webb.carolyn@epamail.epa.gov>
> To: vianet@i-2000.com
> Subject: Leiomyosarcoma Survivor
> Date: Wednesday, September 10, 1997 11:11 AM
>
> Mr. Kent Field,
>
> Kent,
>
>
> My name is Carolyn Webb, I live in Athens, Georgia and work
> for the US EPA as a Senior End User Support Specialist. I
> am a Leiomyosarcoma Survivor, and I am glad to email and
> talked to someone who has had this cancer, since I received
> very little information from my Doctor's. If you can please
> assist me with any information about prognosis etc... I would
> appreciate it. I had felt somewhat alone with this disease.
>
>
>
> I am so glad that I found your Website. I have been thinking
> about my Leiomyosarcoma diagnosis a year ago and got on the Web
> to try and find out more information. I finally just typed the
> word in Yahoo and found your page. I was diagnosed on January
> 4th 1996, I had a mole like round spot on my chest and for years
> I told my Gynocologist about it she said it was a "Mole", It finally
> started to change and I went to a Dermatologist, he thought it
> was sebacious Cyst. He made arrangements for me to come in for a
> biopsy. I remember in the local operation feeling like a rag doll,
> like stuff was being pulled out of my chest, the Dermatologist
> said he did not feel like it was a Sebacious Cyst. Later,
> I went home and did not take notice, I then received a telephone
> message from Dr. Lewis to come in right away. I then came into
> the office but thought he was taking my stitches out, but he
> looked very grim and he sat me down and told me I had "Leiomyosarcoma:
> I then had surgery to remove the growth. Again the Surgeon had
> to go very deep and perform a partial masstectomy, I am still
> in shock that I got this cancer and the only good part is that
> it did not matastesize. It has been one year and I feel alright,
> I still live with this nagging fear that maybe one day it could
> come back. Also, please let me know what your Doctor's said
> about follow-up, I received very little assistance, but I did
> search out a GP who will do a Bone Scan yearly to monitor. Can
> you provide me with other information about follow-up and
> monitoring. I feel like I have had to do all my own medical
> research.
>
> Thank you and God Bless,
> Carolyn Webb
> email - Webb_Carolyn@epamail.epa.gov