From: Arinello, Susan M. <SARINELLO@PARTNERS.ORG>
To: 'vianet@i-2000.com' <vianet@i-2000.com>
Subject: Thank You for sharing your story!!!
Date: Tuesday, February 24, 1998 1:06 PM

Dear Mr. Kent,
I just wanted to write to thank you for sharing your story. My name
is Susan, and my 25 yr. old brother Michael was diagnosed with
leiomyosarcoma about 3.5 years ago. Like yourself we have had a very
hard time getting information about this type of cancer and I have never
before encountered such a wonderful success story as yours.
My brother found out he had cancer in 1994. He had pain in his
abdomen and problems going to the bathroom for a few weeks but
attributed it to a virus. When he did go to the doctor's they ordered a
CAT scan and that's when they discovered the tumor on his stomach. They
promptly went in to remove it and found more tumors and also found that
the cancer had metastasized into his liver. My brother has been
aggressively fighting this awful disease, but recently has begun to
slowly lose his battle. His liver is so enlarged his stomach protrudes
well beyond normal. He has fluid which has built up in his legs and
causes difficulty in his breathing.
I know that your cancer is different than my brother's in that
yours did not metastasize to any other organs in your body, but I was
hoping you might have some suggestions in what we might do to help my
brother or even if you could offer us some information about
leiomyosarcoma itself. Once again Thank You for sharing your experience.
My E-mail address is Arinello.Susan@MGH.harvard.edu



Sincerely,

Susan Arinello